FWIW, my anecdata includes a 32 year old son with the same diagnosis who still lives with me and our diagnosis (for a congenital condition) dates to May-June 2001, nearly 19 years ago.

But, yes, first-hand personal experience and anecdata are roughly synonymous, though the first one lacks the generally dismissive implications of the second.

I believe the parent poster's implication was not that your experience is invalid, but that it doesn't reliably transfer to covid patients (where the complication leading to death is fibrosis of the lungs, which incidentally explains the very high death rate of advanced stage disease, ventilator or not).